In a way I’m glad I took time to reply because it gave me the occasion to read your lovely, lovely post about Sapien (it was really moving) and potentially gave me a better idea of how you see illness.
From interacting on your forum a while back, I would tend to think our views of reality are fairly similar, but just to establish a premise for this conversation, I’ll tell you how I view disease.
From all I’ve learned and experienced, I think the body knows exactly how to stay healthy and how to heal but that our thoughts and emotions can hinder its processes. That illness is usually the end result of thoughts and emotions lived for a long time and not transcended (or very strong acute ones). A way to really call our attention to issues but because most people don’t know this, they still look to external treatments to “fix them” and are actively encouraged by society to do this. Which can definitely provide enough relief at times to change mindset and stumble upon realisations, so I’m not saying there’s not purpose to them but that if one doesn’t find a way to release the thoughts and emotions that created the disease in the first place, it’ll only translate to something else.
So when you mention using the body’s inherent resources to heal itself I couldn’t agree more and I imagine you would do this while helping release the core issues of the psyche?
One thing I have witnessed in people with chronic issues, especially those who have had them for a long time, is how defensive they can be. They often have worked really hard to establish a volatile balance and understandably fiercely protect it.
Another thing, tied into all this, is a very very strong resistance and lots of fears. So most people I have worked with that try new things can create their own nocebo through various mechanisms I have observed. And when experiencing initial resistance that is sometimes necessary to go through to release, they get scared and assume that the very thing that is helping them is actually making them worse so they don’t push through until relief is experience and write it off.
So I guess my suggestion (maybe you already came to that conclusion yourself) would be to state this as a possibility so that they can know it’s a normal thing (but state it in such a way that they don’t fear it and create more resistance) and perhaps be really gentle in the sub so progress is perhaps slower but not hard on them?
Consider me always available if you ever need input, I think it’s a really commendable thing you are doing and would love to see something of the sort exist and work. I think people with chronic illnesses are viewed as weak (and often view themselves as such), but I think it couldn’t be further from the truth. They may not be strong physically, but to deal with such burdens daily, that aren’t understood, aren’t even acknowledged and with very little empathy and help takes a strength of character that is incredible and beautiful. To me they are invisible warriors.
Most of the ones I have gotten to know through the years have adopted values such as generosity (I was more helped by people who had barely anything in terms of energy and resources than by those who “had it all”), honesty, empathy which makes them phenomenal human beings. And if they could transcend their issues, society would be much richer. At the moment those people are often isolated through their challenges but I can only imagine what the world would be like if such values came back en masse on the workplace, is social interactions, etc. So any help I can provide you with, I will gladly give