I have occipital neurologia - first and foremost: you need to actually first get this verified as it’s not a relatively common thing : your neurologist first, along with your eye doctor.
I mean, to be frank: your vestibular, tmj, skull, subocipital regions - all of that - and so many more- regions - play a factor to the pain your talking about. Meaning
It can be a bunch of other stuff.
The following is what I deal that I didn’t see you mention, so consider: is your gait affected? Is it very difficult washing your hair? Can you not stand light? Can you not wear contacts / using eyes is too straining? Jarring knive like pain originating from the back of head (suboccipital areas)? If your answer to all that is yes, then … ok maybe google led to a plausible conclusion
Except google didn’t go to med school lol.
I mean you said it’s getting worse- occipital neurologist shouldn’t be, it’s not really like degenerative- It just is.
I don’t think we are the right ones to ask but
Nonetheless: blue print of life / the inner pillar of power , pain control 2.0 , breath of the belly, and muscle and bone massage.
And Ego dissolution (I’ve noticed this helps me lower, in relation to pain)
Also icing the suboccipital regions (two side behind neck) helps
Not straining neck , careful , with posture and movements .
But please go to a doctor my dude. Please inform us how it goes :)
sending you an armor of light!